To an outside observer, Psychogenic Non-Epileptic Seizures (PNES) look like epileptic seizures. The manifestations of PNES include collapses, impaired consciousness, and seizure-related ...
To an outside observer, Psychogenic Non-Epileptic Seizures (PNES) look like epileptic seizures. The manifestations of PNES include collapses, impaired consciousness, and seizure-related injuries. However, unlike epileptic seizures, which are the result of abnormal electrical discharges in the brain, most PNES are an automatic psychological response to a trigger perceived as threatening. Not least because the changes in the brain that underpin PNES cannot be visualized easily with clinical tests (such as the EEG), there are many uncertainties and controversies surrounding the condition.Patients often provoke a mixture of emotions in healthcare professionals. In the authors’ previous book, In Our Words: Personal Accounts of Living with Non-Epileptic Seizure
s, over 100 individuals with PNES and their families wrote about their experiences with the condition. While some had positive care experiences, most were left feeling confused, angry, and abandoned by the clinicians they had encountered. Non-Epileptic Seizures in Our Experience: Accounts of Healthcare Professionals
complements the previous book by presenting the perspectives of over ninety healthcare professionals from around the world. The anonymous publication format enabled many not only to share success stories but also to be open about difficulties and failures.There will be something to learn from this book for highly experienced professionals as well as for relative novices and those experiencing PNES. The hope is that this book will challenge negative attitudes surrounding the condition, improve understanding between healthcare professionals and patients, and, ultimately, advance the quality of care provided for those with PNES.Less